Living With and Beyond Cancer

The ‘Macmillan Living With and Beyond Cancer in Morecambe Bay’ (LWBCMB) project aims to improve the quality of survivorship for cancer patients across the Lancashire North and South Cumbria region.

People who have faced cancer regularly say that they feel cast adrift once their treatment is completed and frequent hospital visits stop, and that the standard follow up model provides little benefit in their long term return to health and well-being.

Local NHS Clinical Commissioning Groups and Macmillan Cancer Support have come together to identify and address the challenges experienced by service users. The LWBCMB programme aims to better provide for a patient’s individual needs via implementation of early and continued holistic support throughout the cancer pathway, enabling independent self-care via supported self-managed follow up.

The project seeks to work across acute, primary and voluntary care in delivering more integrated care with a focus on improved collaboration between the sectors in meeting holistic needs and improved information exchange between hospital and community care.

Service users & carers, from a range of backgrounds, are essential in informing the direction of this programme. If you use breast, prostate or colorectal cancer services and would like to get involved we are keen to hear from you. A variety of opportunities for contribution will arise throughout the project, so get involved a little or a lot.

If you wish to help shape future, quality, services then please contact Louisa Balderson. Tel 01524 519376 or email louisa.balderson@morecambebayccg.nhs.uk

For further information on the project goals please contact Neil Wynne. Tel 01524 519 376 or email neil.wynne@morecambebayccg.nhs.uk

Macmillan Living With and Beyond Cancer in Morecambe Bay — Series of Open Space Events – Final Report / Executive Summary (Facilitators)

I am pleased to attach the final report (Morecambe Bay Open Space Report (pdf 895.5 KB) of the series of Open Space Events held February – April 2017 as part of the Macmillan project Living With and Beyond Cancer in Morecambe Bay. An executive summary is also attached — Open Space Executive Summary (pdf 467.8 KB). We appreciate your help in circulating the report widely across your networks. 

Opportunities for people affected by cancer to be involved in the project and beyond continue to emerge in response to the headline themes. For example:

  • An Information Advisory Group which looks at getting the best out of the information that’s provided at diagnosis and afterwards
  • An informative and thought provoking patient story which outlined the experience of enduring effects of pelvic radiotherapy to an audience of practice nurses, clinical nurse specialists, GPs and other partners at the Primary Care Education Forum.

Many thanks for your continued interest and input into the project so far. Any comments, queries or questions are welcome.